Tag Archives: Preservatives

Fibromyalgia & ME/CFS Awareness Day

The day after Italy‘s Parliament on Wednesday May 11 overwhelming gave final approval to a law recognizing civil unions between same-sex partners, the world had again a day to think of a lot of things.

The day that Brazil’s Senate has voted to suspend President Dilma Rousseff immediately and begin impeachment proceedings against her on accusations of tampering with accounts to hide a budget shortfall, the world also thought of many people who need lots of funds to pay for their health. Many of them living in a healthy country not being themselves in a healthy state.

Ten years after the mass unrest by the Primeiro Comando da Capital began in São Paulo (Brazil), leaving at least 150 dead, on May 12 the world also remembered the 7.3-magnitude earthquake and six major aftershocks hit Nepal, killing over 200 people, but leaving many also handicapped.

It is for disabled people certain days are also created to bring their situation in attention. On the Day of the Finnish Identity (Finland) we also have an International Nurses Day and the International Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Awareness Day.

For a long time the medical world did not want to take the condition serious by which people where bullied with concentration problems and need of sleep, feeling tired all the time.

Also the way how media looked at CFS or Chronic fatigue syndrome has often been controversial; in November 1990 the magazine Newsweek ran a cover story on CFS which although supportive of an organic cause of the illness also featured the term Yuppie Flu. Reflecting a stereotype that CFS mainly affected yuppies, the implication was that CFS was a form of burnout.

Luckily today the world recognises Chronic fatigue syndrome (CFS) as a condition that causes extreme tiredness. Though known it needs to bring it under the loop and bring more awareness under the entices, there has been a created a special day for them. This in the hope that more people can come to understand how the victims of that disease have debilitating fatigue that lasts for six months or longer. At the moment the medical world does not yet have a known cause, which makes that still a lot of research has to be done.

Many doctors and researchers think that CFS may not be a single illness but a group of symptoms caused by several conditions. One theory is that a microorganism, such as a virus, or a chemical injures the body and damages the immune system, allowing dormant viruses to become active. When these viruses start growing again, the immune system may overreact and produce chemicals called cytokines that can cause flu-like symptoms. Immune abnormalities have been found in studies. {Gale Encyclopedia of Alternative Medicine | 2005 | Rowland, Belinda; Odle, Teresa}

We do have to take into account that having CFS is not just a matter of being tired. Those people with CFS having severe fatigue that keeps them from performing their normal daily activities should also know that this should not mean they are passed out by the community or would not be able to do something waluable.

Their big problem is to find work, attend school, or even to take part in social activities and to be respected for what is holding them back to give the 100%. And if they love to exercise or try to be active in spite of their fatigue, people with CFS experience what some patients call “payback”— debilitating exhaustion that can confine them to bed for days.

Often such people do not know where to find solace and are confronted with people who do not understand their situations and often consider them as lazy or as profiteers. though when we look at the present figures it is clear that there are so many people caught by that trigger who wants to pull them down, that we also have to question if not somebody in our near environment is having it as well and if it also not have to do with what we have been added in the things we eat (all those chemical additives).

The Bendy Beauty girl started blogging on July 2015 it seems with mostly looking at Glossyboxes. But using these skin creams and treatments perhaps she also came to wonder what is in it all those products we so gladly put on our body hoping to look better, but are they making us also better? Often not. In lots of the additives bad products do a lot of damage to our body. Paraben, widely used preservatives in cosmetic and pharmaceutical products and collagen, which has many medical uses in treating complications of the bones and skin, or not so innocent as many think.

In man’s hope to stay young or to look younger than the real age many brands have jumped on the collagen bandwagon to produce gels, creams and powders but also dermal fillers, to rejuvenate skin and fill wrinkles.

May the 1st being the start of Ehlers-Danlos Syndrome awareness month the beauty girl wanted doing posts about EDS, covering the different types of EDS, where the zebra comes from, fibromyalgia awareness day, the HMSA and their work with all of the hypermobility causing syndromes.

For those of you that aren’t aware, the zebra is the mascot animal of Ehlers-Danlos syndrome and as a result many of us with EDS collect zebra themed items. We might collect them because we love zebras or because people buy them for us on a regular basis – some EDSers have even been known to get fed up of the whole zebra thing! {Paperchase Serengeti Range – Zebras!}

In one article she also gives 8 self-care tips for getting through a flare up.

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Read about the collagen:

Bendy Investigates: What is Collagen?

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Preceding articles

Though disabled in the eyes of society able to do great things

What would you do if…?

What would you do if…? Continued trial

What would you do if…? Continued trial

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Further reading

  1. Chronic Fatigue/M.E Awareness week
  2. Chronic Illness and Depression- The Link
  3. Chronic Life: Getting a New Diagnosis
  4. Narcolepsy gives and takes.
  5. The Dietitian

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Bendy Beauty

fibro1smToday my zebra has gone purple as it is the awareness day for fibromyalgia as well as for ME/CFS.
I don’t often talk about the fact that I have a fibromyalgia (or fibro for short) diagnosis as well as my Ehlers-Danlos syndrome but it is actually quite common for people with Hypermobile EDS to get fibro secondary to their EDS.

Secondary fibromyalgia is slightly different from the more well known about primary fibromyalgia. The more common primary fibro has no identifiable cause, whereas secondary fibro does – in my case my EDS. This means I can sometimes foresee a flare as a result of a dislocation or series of dislocations.

What is Fibromyalgia?

Fibro is a chronic and sometimes disabling condition characterised mainly by persistent musculo-skeletal pain with no identifiable cause. Other common symptoms among sufferers include extreme fatigue, brain fog which is sometimes called ‘fibro fog’, muscle spasms and cramps…

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My Choice (by Jezabel Jonson)

I would not say a person has to undergo certain situations to have an idea of what is going on in such circumstance. People can have some idea of what a person must or can undergo in a certain situation. We also do know that every person in a similar situation undergoes it differently.

Not one abortion by woman is the same as an abortion by an other woman.

In this world of a lot of violence also not all unwanted babies do come from horrible situations, like rape or unwanted sex. We also must be aware that because of no allowance or of no provision or of economical difficulties to provide for contraceptive pills, condoms and/or implanon (the rod) the world also sees about 21.6 million women each year with unsafe abortions, adolescents suffering the most from complications and having the highest unmet need for contraception ‒ yet are still not perceived as eligible for “family planning” in many countries.

We also in many countries can find medical abuse, such as refusal to provide pain relief or the use of caesarean section to avoid doing a second trimester abortion that would be illegal (Argentina) or to save the life of the baby when the woman has asked for an abortion (Ireland, Paraguay).

For those persons to come to a decision which is going to change their life for ever is not easy and often underestimated.

In our society we also have to take certain responsibilities which give no excuse to accuse the one who has become pregnant. To incriminate the person with child is an easy way to escape the responsibility of not having guided her when she was young and without child. Before things happened female beings should have learned about ways to prevent and in case something went wrong how to avoid a pregnancy (e.g. after-morning pill).

Though when no help is offered or no knowledge about safe ways was there when the person comes to know she is pregnant it will be up to that person herself to make decisions, which not always will be easy to make.

In the West the decision to have an abortion would be totally different than in China were there are about 13 million abortions conducted every year. The US, by comparison, which has about one-quarter of the population, conducts around one million annually. Forced abortions, as part of the government’s one-child policy, have long been used to contain the country’s population since the 1980’s. It is more common to see an ad for “painless abortions” than for condoms in China.

The Holy Father talks frequently about spiritual struggle, as a devoted follower of St Ignatius Loyola would do. He has clearly condemned abortion on many occasions, and he has said that the “door is closed” to the ordination of women to the priesthood. At the same time in many other denominations the woman is still a second citizens and seems to be there only to reproduce. But as Pope Francis I has so deftly demonstrated, respect for life does not fit neatly into left or right, liberal or conservative. Undocumented workers’ lives are worth respect. Unborn life is worth respect. Muslim refugees’ lives are worth respect. The handicapped, the elderly, the patient with cancer or a brain tumour – their lives are worth respect. Criminals in prison – even on death row- their lives are worth respect. The Catholic Church, according the Pope, has always faithfully taught that every life is precious.

The Bible for sure has taught that and still demands human beings to have respect for every living soul. This respect is for all living beings (plants, animals, people) and that is so often forgotten by those who want to throw stones to people who have chosen to end the life of a foetus. What we also see and hear is that of those protesting against abortion there are many who are against the abolition of weapons and against the abolition of the death penalty. Suddenly there it does not seem to be wrong to take life of some other living being (be it a man, a woman, an animal, but also even not a child) Is that not a hypocritic attitude of many Americans?

We all better should listen to those people who had the experience, for whatever reason, to be put in front of the decision-making.

It is wrong to think mishaps only happen to certain people or even only to yourself. No one is excluded from certain unpleasant happenings in life. Therefore we should be well aware that others can have had certain experiences we never would like to have but which we also not would like to have others, or when there are people who had to undergo certain experiences that they find ways out of it and can find ways to come back on the right track of a better life.

The witnessing on Jezabel and Catt therefore is important and may not be ignored.
We all must be aware that every day somewhere in the world living souls are confronted with
“The good, the bad, and the ugly. ” and perhaps then it is better to have “No censorship, no bullshit, no knights in shining armour.”

Lets face reality and help each other to bear it.

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Preceding: Whoopi Goldberg commandments and abortion

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Additional reading

  1. A philosophical error which rejects the body as part of the human person
  2. From Despair to Victory
  3. I can’t believe that … (4) God’s word would be so violent
  4. 2014 Human Rights
  5. American Senate ignoring many voices and tears of their own people
  6. Roman Catholic Church in the United States of America at war
  7. Caricaturing and disapproving sceptics, religious critics and figured out ethics
  8. About lions and babies
  9. Westboro Baptist Church and Catholic Truth against Nelson Mandela
  10. Always a choice

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Further reading:

Jezabel & Catt

I want to talk about abortion. I want to talk about my abortion.

I don’t want this blog to turn into a pro choice versus anti abortion discussion. I merely want to share my experience about a very personal and difficult time in my life.  Everyone has their own opinions and everyone will have some form of judgement when they read this. The fact is, that is your opinion and your judgement. Not mine.

So, here goes. When I was 21 I fell pregnant. It was an accident, I didn’t plan it and I was scared. I was at university, I had just met this man and I was petrified. I was scared not just for the 21 year old girl with stars in her eyes, I was also scared about how I would be treated when I admitted to myself I didn’t want a baby.

As a woman in…

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