Tag Archives: Amyotrophic lateral sclerosis

Though disabled in the eyes of society able to do great things

How common are specific disabilitiesHow many people do not take it for granted that we can make our bodies move about the world as we command them to. But lots of people have no such blessing. There are even people who remain conscious but are unable to move, communicate, or even breathe on their own. For them their body may be like a prison in which they are closed up and have no prospect to become liberated. Can you imagine how it must feel , knowing you never get out of that prison, which limits you to one particular place where no easy communication is possible?

People can be periodically blocked or not able to move any more. Others can have periodic paralyses as a genetic disorder characterized by episodes of sudden muscular paralysis. Again others may have got the bad news they shall become more and more limited in what they can do to end up to be fully limited in their actions and having to face death, totally paralysed. For them it is not just for minutes or hours that muscles become flaccid and useless. For several people there are no such episodes which are reversible with treatment of abnormal potassium levels, and in most cases aren’t fatal.

What would you do if you come to know your body is deteriorating?

English: 1934 Goudey baseball card of Lou Gehr...

English: 1934 Goudey baseball card of Lou Gehrig of the New York Yankees #61. PD-not-renewed. (Photo credit: Wikipedia)

What if you are a lover of movement, a dancer or a baseball player like Ludwig Heinrich Gehrig, better known under Lou Gehrig and his byname the Iron Horse or Iron Man (born June 19, 1903, New York, New York, U.S.—died June 2, 1941, New York City). He was one of the most durable players in American professional baseball and one of its great hitters, but had to hear terrible news after a year of speedy decline, falling several times, not having strong wings any more, in 1939, getting diagnosed with a rare nervous system disorder, amyotrophic lateral sclerosis (ALS); this disease has come to be known as Lou Gehrig’s disease.

A sportswriter observed that Gehrig looked “like a man trying to lift heavy trunks into a truck.”

When the Yankees arrived in Detroit for a May 2 game, Gehrig was hitting .143. He took himself out of the lineup, telling McCarthy it was “for the good of the team.” Gehrig took the lineup card to home plate with Babe Dahlgren‘s name at first base. The Detroit fans applauded for two minutes. Gehrig tipped his cap and disappeared into the dugout and the record books. He would never play another game. His streak of 2,130 games was a record that would stand for 56 years. He finished with 493 home runs, 535 doubles, 162 triples, a .340 batting average and 1,990 RBIs, third-highest among all major leaguers. {Encyclopedia of World Biography | 2004: Lou Gehrig}

On May 2, he took himself out of the Yankees’ lineup, and he never played baseball again. He left baseball with a career batting average of .340, with 493 home runs and 1,990 runs batted in, all during regular season play. In seven World Series (34 games), he batted .361, hit 10 home runs, and drove in 35 runs. {Encyclopedia  Britannica – biography:Lou-Gehrig} He was elected to the National Baseball Hall of Fame in 1939.

What if you start feeling those early symptoms which may only involve mild weakness, slurred speech, or twitching?

However those patients who are slowly locked inside their bodies, losing their ability to control any movement should not loose hope for what they can achieve. Even when in the inevitable conclusion, the unlucky victims getting unable to even speak or swallow there are ways out to be able to communicate. Though they might come completely dependent upon others for total care, some of the victims have proven to be stronger than their disease and mad sure they could mean something special in our society.

When sensation and the mind are left intact, leaving the patient helplessly aware of their imprisonment it is a matter of daring to not allow the adversary pull you down. Do not allow yourself being pulled down neither by those around you, who may loose patience with ‘a case like you’, but use that still active brain to show the world you are able to think properly.

English: Professor Stephen Hawking in Cambridg...

Professor Stephen Hawking in Cambridge, UK. Español: El profesor Stephen Hawking en Cambridge, Reino Unido. (Photo credit: Wikipedia)

Renowned physicist Stephen Hawking, who has surpassed typical survival expectations by decades, is one of the most beautiful examples how a person can be stronger than his captor or retainer. At his last visit in Belgium, last Autumn, he gave a marvellous interview on the Flemish television, where he was followed for his whole stay in that small country where they look up at that grate man.

After having been an outstanding student at St. Alban’s School he received a first-class honors degree in physics at University College, Oxford (B.A., 1962), Hawking set off for Cambridge University to begin studying at Trinity Hall, (Ph.D., 1966) and looking at the themes of cosmology which would preoccupy him throughout his life.

Stephen William Hawking was elected a research fellow at Gonville and Caius College at Cambridge. Though it was already in the early 1960s that Hawking contracted amyotrophic lateral sclerosis but that did not stop him to continue with what he liked best. He continued to work despite the disease’s progressively disabling effects and became considered the most insightful theoretical physicist since Albert Einstein. with good reason he gained a worldwide following, not only among other scientists, but also among a great many laypeople and as an author and lecturer, he has achieved celebrity status.

Black & White photo of Hawking at NASA.

Stephen William Hawking, CH, CBE, FRS, FRSA , English theoretical physicist, cosmologist, author and Director of Research at the Centre for Theoretical Cosmology within the University of Cambridge. – Here seen at NASA in the 1980s.

For religious people his explanation of the Big Bang theory may be very revealing. Hawking is not afraid to question such idea if there had been a beginning to space-time (a big bang), or whether one state of affairs (one universe, to put it loosely) simply gave birth to another without beginning or end. He also dare to tell that there is so much we do not know yet and that we may not underestimate the force of nature, that new universes might be born frequently through little-understood anomalies in space-time. He also investigated string theory and exploding black holes, and showed mathematically that numerous miniature black holes may have formed early in the history of our universe. When humans develop the unified field theory, said Hawking, they will “know the mind of God.”

His goal to come to a complete understanding of the universe,

“why it is as it is and why it exists at all.”

is something he nor we shall be able to reach, but for sure he has proven that we do not allow a disease to imprison or chain us and to have it to make us useless. He is the living proof, that though disabled, a human being can be able to do much.

 

Be it ALS, MS, AS, Transverse myelitis, High-Level Quadriplegia, Akinetic Mutism, Fibromyalgia, Locked-In Syndrome or any other nightmare diseases, let it not destroy your mind, your way of thinking your way of being yourself a “I Am” wroth being.

*

Please do find also a list of some famous and well known people with various disabilities and conditions: Famous People with Disability

**

Disability Videos
Selection of video clips providing information for and about persons with disabilities in video format.

+

Preceding articles:

What would you do if…?

What would you do if…? Continued trial

See the conquest and believe that we can gain the victory

The Goal

Cosmina Craciunescu looks on Positivism

+++

Further reading:

  1. Civil Rights Worldwide – Disability
  2. Silence as Acquiescence: On the Need to Address Disability Stereotyping in Kocherov and Sergeyeva v. Russia
  3. What does body identity mean today?
  4. Life in chronic pain
  5. Access for All: Agenda for Americans with Disabilities – 3 New Bills
  6. Disability: Benefits, Facts & Resources for Persons with Disabilities
  7. It’s All Relative
  8. We can do Anything, but hear!
  9. “The Danger of Silence” by Clint Smith
  10. I will not be defined
  11. Schrodinger’s Chiari
  12. Your daughter has ABS…
  13. My Fibromyalgia Awareness Day
  14. Fibromyalgia & ME/CFS Awareness Day
  15. The Burden of ME/CFS (Chronic Fatigue Syndrome)
  16. Ableism & Hate Crime – Disability
  17. Suffering with M.E..
  18. Bhil family struggles with three disabled members
  19. DWP: Disabled Woman, Persecuted.
  20. The Daily Fix: The Jeeja Ghosh judgement is an important moment in the fight for disability rights
  21. Entertainment – Disability
  22. When Snapchat Filters Mock Your Medical Condition
  23. It’s wicked to mock the afflicted – Kenneth Howerd…
  24. Leader of the PACK
  25. To J.K. Rowling from Us
  26. The Book That Changed My Life The Most
  27. Assistive Technology – Disability
  28. Update and NoobGrind GTX 1080 article
  29. The Scars From Which I Have Grown
  30. Disability in the Church
  31. Pastor Lingerfelt, Do We Look “Retarded” To You?
  32. Want to Be an Awesome Ally for People with Disabilities?
  33. Over-Explaining
  34. Sunshine or Rain
  35. When Strength Isn’t Enough
  36. A Circus Stole Some of My Monkeys!
  37. Intrview: My Story – Living with Aspergers Syndrome
  38. “I just wanted to die” – living with leprosy in Myanmar.
  39. What is on your bucket list?
  40. She might have lost both her arms and legs but that’s not stopping Shalini from participating in a marathon contest!
  41. Lessons I have learned
  42. The cost of living (with a disability)
  43. Bringing Disability Accessibility to Colchester: How YOU Can Help
  44. Euphemistic Terminology
  45. Time Passes…Life Goes On…Even Under Seeming Odds
  46. Bad to worse to… hopeful?
  47. Not much to say
  48. Life is Short, True Love is Rare….

+++

6 Comments

Filed under Being and Feeling, Health affairs, History, Positive thoughts, Uncategorized, Welfare matters

Happiness :-)

Lots of adults have lost the innocence they had as baby. Many of them also got so spoiled in their life that they can not find happiness any more in the small things of life.

We should cherry each moment of the day that we can be alive and share our time with others.

+
To remember:

Thought-provoking article  “10 Things to Give up in Exchange for Happiness.”

Only about 10%  will succeed in keeping New Year’s Resolution resolution.

Like to-do lists > never-ending.

We are  image-conscious

It’s hard to please anyone when you’re completely helpless

Better  replace gossip by words of hope and encouragement.

Give up spending money on what you don’t need in effort to buy happiness.

We would say also do not waste time nor spent money on unnecessary things and activities

Give up control.

Happiness is just another emotion = like all emotions subject to our circumstances.

For instance, sadness over the loss of a loved-one or other bad news, immediately destroys any happiness that we might have had.

Joy might be hidden for a time but Hope in God is like a compass that leads us back to joy.

Joy is “the source or cause of great happiness.”

Look to God for hope and you’ll find true and lasting joy and that joy will result in happiness.

+

Find also:
  1. Hope for the future
  2. Hope is faith holding out its hand in the dark
  3. Hope does not disappoint us
  4. Without God no purpose, no goal, no hope
  • Be Strong (antoinettevdberg.wordpress.com)
    Some consider it a trivial matter for a believer’s mind to be confused, swirling with doubts and fears, but God doesn’t think so. Our Master doesn’t want us to be fearful. Instead, he wants us to be without worry, doubt, and cowardice. Our Master doesn’t think as lightly about our unbelief as we do.
    When we are in despair, we are suffering from a terrible illness which should be carried at once to the beloved Physician. Doubtfulness and discouragement is a disease, which can become an epidemic, spreading among the Lord’s flock. One downcast believer can influence twenty others, for better or worse.
  • Happiness (magdalenaperks.wordpress.com)
    There is no wrong in being happy, feeling grateful, or looking for joy. The real concern for Christians is that we displace our dependency on and faith in God while seeking these pleasures. While all measures of such positive emotions must be, in some way, a gift from God, we are concerned principally with receiving these graces directly from God, and not from our own selfish pursuits.
  • Idle Gossip (focusedandfree.com)

    The issue of gossip is repeatedly addressed in both the old and new testaments. The Scriptures make clear that “the things that come out of the mouth come from the heart, and these make a man ‘unclean’” (Matthew 15:18).

    A gossip is a person who spreads rumors or idle, fruitless tales. The apostle Paul described some of the early believers as “not only idle but gossips [tattlers, KJV] and busybodies” (1 Timothy 5:13). Jesus said, “For every idle word men may speak, they will give account of it in the day of judgment” (Matthew 12:36).

  • God’s Heart was Broken (butchdean.wordpress.com)
    There are many lessons to be learned in these passages, but I wonder if we ever focus on…

    “…and his heart was filled with pain.”

  • An Innate Ability to Perceive (robertjrgraham.com)
    Emotional intelligence, also known as EI, is the innate ability of a person to perceive, assess, and influence one’s own emotion and the emotions of other people around them. The term emotional intelligence itself originated with Dr. Wayne Payne 1985, but the term became popular with the book Emotional Intelligence, written by Daniel Goldman in 1995.
  • Thought, Word, Deed (robertjrgraham.com)
    Life is a creation, not a discovery. You do not live each day to discover what it holds for you, but to create it. You are creating your reality every minute, probably without knowing it.

Unshakable Hope

happy baby

From what I’ve observed, healthy babies, like my 6 month old grandson, are generally happy babies. It seems that we are created to be happy, so why are so why are many adults unhappy?

I recently read a thought-provoking article titled “10 Things to Give up in Exchange for Happiness.” The article wasn’t written from a Christian perspective, but I think everyone, regardless of their beliefs, would probably agree with the author’s following suggestions.

exchange for happinessThey’re good suggestions, but…

According to research, only about 10% of those who make just one New Year’s Resolution will succeed in keeping that resolution. I think the problem with the list is that the author is essentially asking us to make multiple resolutions in our pursuit of happiness. What are the odds?

Even if some strong-willed person succeeded in overcoming every one of these 10 happiness thieves, do you think they’d really be happy? My experience with battling…

View original post 716 more words

3 Comments

Filed under Being and Feeling, Re-Blogs and Great Blogs